In the second half of 2020 I started a book-long erasure poetry and collage project: The Summer Book project.

I have been mining Tove Jansson’s The Summer Book for poetic lines that express the isolation of living with a bewildering chronic illness and the struggle to keep a sense of purpose. This came about after reading a line in the introduction about how “an island can be dreadful for someone from the outside” and how it “has no need of you”. I just couldn’t decide if I’m the person the island has no need of or if I’m the island.

Progress has been slow, because I’m constantly distracted by a million things. Then there was some growth.

I wrote a post a while back “Where to go from here“. I talk about how I realised that this victim narrative was keeping me trapped in my discomfort. So now I’m making a conscious effort to draw out the positive instead of the negative.

You can follow my progress on my Instagram page.